“Discuss how one of the 6Cs is translated into practice in the MDT management of a patient with Down’s Syndrome”
After the serious shortcomings within the Mid-Staffordshire NHS Trust came to light, The Francis Report (Francis, 2013) investigated how the conditions of inexcusable care could prevail within the trust. The Francis Report proposed several extensive changes that could improve the National Health Service (NHS). Garner (2014) informs that these changes include that leaders need to be effective and accountable, staff should be empowered to work in partnership, each trust should aim to improve innovation and quality, whilst putting the patient first. The Department of Health (DH) reflected on the findings and in response to The Francis
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Thus, people with DS face limitations in developments in school, professional opportunities and in independent living. Furthermore, Lumind Research Down’s Syndrome Foundation (2017) add that in recent years, private and public services, including early intervention, special education and job training, have enhanced the lives of those who have DS. Nevertheless, cognitive challenges make it difficult for most to live independently during adulthood, and additionally most of those with DS experience the early onset of Alzheimer’s Disease (Castro, Zaman and Holland …show more content…
Early beliefs suggest that the relationship was rare (Rutter and Hersov 1985). Warner et al (2014) emphasise that the most recent research shows otherwise and there is now a significant minority of patients with DS that make the diagnostic criteria for ASD. Moss et al (2013) state that these patients present with stereotypical behaviours which includes over activity, impulsivity and self-injurious behaviour. This could be a resulting factor as to why children and young people with learning disabilities (LD) have greater hospital admissions an greater lengths of hospital stay than children without LD (Oulton (2013). McDowell and Craven (2011) say that children with DS on average spend 2–3 times more time in hospital than those without Down’s syndrome.
Gurney et al (2006) and Nocon (2006) both acknowledge that children with learning disabilities have a greater need for the health services compared to the general population and this high level of need extends into adulthood. A recent Confidential inquiry into premature deaths of patients with LD has found that the average age of death of people with LD (sixty-five years for males and 63 years for females) as being significantly less than the United Kingdom population of seventy-eight years for men and eighty-three for women (Heslop et al
Furthermore, staff ought to treat patients as co-producers of health and not passive recipient of care. Clinical governance (CG) is a notable driver of continuous improvement in the health sector. According to Department of Health (DoH) (1997) CG lays emphasises on excellence in clinical care. The NHS in 2013 established the improvement quality (IQ) which sought to support achievements of health outcomes in England. The Francis report (2010) highlighted various failures in quality of care at the Mid Staffordshire NHS Foundation Trust. Jennings (2008) argue for transforming healthcare by rapidly increasing and broadening world-class leadership with innovative ways of working and technology. The NHS leadership framework (2011) advocates for staff potentials to contribute effectively in service improvement regardless of their roles and disciplines. This permits a workforce that develops a culture of continuous service
One of the biggest obstacles to successful management of the NHS, and also to any analysis of its current well being, remains the significant lack of any valid information as to what the NHS does, how much it costs and where the money is spent. Indeed, it is perhaps surprising that 'the 1990 changes' were conceived and implemented as fast as they were, given the lack of information that was available in 1988. (Ham, 1996) Attempts were made at the start to ensure that hospitals began from a 'level playing field' so that they were in fair competition with one another, but the sometimes 10 fold differences in the early quoted costs for identical services in different hospitals had as much to do with differing costs of maintaining buildings
Since the Mid Staffordshire trust was investigated by Robert Francis in 2009 regarding the lack of care given to the patients; there has been many changes implemented within the NHS to improve the care and safety of the patients. Some of the recent changes include the whistleblowing policy, implementation of the 6 c’s and the CQC. These were all put into place to try and stop any further problems similar to the Staffordshire scandal in the future. All nurses and midwives must be registered to Professional body in order to practice which could be the NMC. Another way to ensure the safety and best care for the patients is to
The Secretary of State for Health, Andrew Lansley, has set out the government’s plans to reform the NHS in England. The plans, documented in a new white paper entitled ‘Equity and Excellence: Liberating the NHS’, state that more power will be given to patients and professionals in the design and delivery of health and social care. This briefing outlines a summary of the key reforms. Please note, some terms which require further clarification are explained in a glossary at the end of this document. The white paper focuses on four key areas: 1. 2. 3. 4. Putting patients and the public first Improving healthcare outcomes Autonomy, accountability and democratic
Downs syndrome-anyone who has downs syndrome is likely to have some level of learning disability, usually children are able to do the majority of tasks themselves, however they may reach certain milestones slightly later than some of their peers. ADD/ADHD-children with this diagnosis can suffer with many difficulties as they grow, they may be irritable, can be
In 2007 Julie Bailey and family members of those who died due to the negligent care at the Mid Staffordshire hospital set up a campaign which they named ‘Cure the NHS’ BBC News (2010) expands on this story. This prompted an investigation that changed everything. The scandal grabbed national attention following a yearlong investigation made by the Healthcare Commission in 2008 at the Stafford hospital. Sir Robert Francis led the investigation in which he made a staggering 290 recommendations
“Down’s syndrome or learning difficulties are at a lower risk of 4 in 10 infants per 1000 live infants born”.
Different disabilities may affect development in different ways. However, with support from teachers and parents, these affects can be minimalised. A learning disability such as Dyslexia (a common type of learning difficulty that can cause problems with reading, writing and spelling) could lead to a child becoming frustrated which could further lead to behavioural issues. Moreover, without assistance, Dyslexia will allow for the child to become unmotivated and prove to be a hindrance to them as they look to strive in later life. Physical disabilities such as Cerebral Palsy (a neurological condition that effects movement and coordination) will affect development as children will have difficulties communicating, eating and drinking and with their
A small group of students, 2 girls and 8 boys, with Down syndrome were recruited to participate in a case study. The students, ranging in age from 6-10 years, attended a mainstream elementary school and received support from a teaching assistant throughout the day. All of the students who were apart of the study had previously received intensive reading and language interventions.
The aim of the NHS is to ensure continuous improvement in the standards of clinical care, to prevent errors in clinical practice, to raise standards and improving outcomes offering access to a range of healthcare services (Freedom D, 2002). This paper intends to
Down syndrome occurs in people who were born with three, rather than two, copies of the 21st chromosome. This extra genetic material is what brings about the effects of Down’s syndrome. It is often characterized by an impairment of cognitive (process of thought) ability. Most people with Down syndrome have lower than average, mild to moderate, cognitive ability and this cannot be predicted at birth. A smaller number fall into the severe impairment range. Physically, people with Down’s syndrome are smaller in stature, have less muscle tone, and have noticeably different facial features. The number of these births occurs approximately in one out of every one thousand (ndss.org). As of 2007, the number of people in the United States with Down syndrome stood at about 350,000. These numbers will shrink because now (most) potential parents can know the condition of the fetus early. This information is included to let the reader relate to the struggles that some with Down syndrome goes through.
The field has not quite reached consensus on definitions of LD, and there are professionals as well as members of the public who do not understand them or believe they exist. For example, in a Roper (1995) survey of 1,200 adults, 85% associated LD with mental retardation 66% with deafness, and 60% with blindness. In Rocco's (1997) research, faculty "questioned the existence of certain conditions or if they existed, the appropriateness of classifying the condition as a disability" (p. 158). However, most definitions describe learning disabilities as a group of disorders that affect the ability to acquire and use listening, speaking, reading, writing, reasoning, or math skills (Gerber and Reiff 1994;
Growing, developing and learning are the facts of life for all children. Each day children are faced with many new concepts and various challenges. Can you imagine how it feels for a child to face not only new challenges life has, but to face these challenges while living with a learning disability? These challenges are met not just when they begin school either. Students suffer from learning disabilities from the moment they begin learning, not when they start school. Learning disabilities are real and they affect millions of people. “One such disability that affects over approximately 15 percent of the total American population is dyslexia” ( Nosek 5).
Learning disabilities are a life long struggle but if caught at a young age and early intervention takes place. The stress on the child and family is greatly reduced. Learning disabilities spread to every part of a child’s life affecting them socially. Teachers must remain professional and refrain from calling students lazy as in Adams case. A good teacher or specialist can demystify a learning disability and help a child’s
Do you know anyone who suffers from a learning disability? There are several disabilities out there, so chances are you must know someone who battles with the day-to-day hassles. But, are learning disabilities really a hassle? More often than not, this can be considered a misconception. Learning disabilities (LD) affect the way a person “of at least average intelligence receives, stores, and processes information” (NCLD 2001). This neurological disorder prevents children especially from being able to perform well academically. Therefore more time and special programs are fostered to them. Once one is educated about what the disability means, the causes of LD, what programs are available to