After reading the Chapter 14 from Marini & Stebnicki, mothers with disabilities do have a hard time when maintaining their parenting responsibilities. At times it can be the same way for mothers without a disability. It is a strain for mothers with a disability, because they are aware of the limit opportunities they have, but will not let their own children see their difficulties. I believe that mothers with a disability will not let their disability keep them from their duties of being a mother. It does not matter if their disability came before or after their children. Also, some mothers with a disability do not want their children to be taught, or obligated to take care of them. They want their children to live as children while going developing
Being a responsible parent wanting your child with the best living environment and attending a great school for their education. Parents want to the foremost in their child’s best interest. Children do not know what necessary good is or bad for them. That is why it is as parent job to teach them as they growing up. Mold them right as a child therefore in their adult life most likely they will head down the right positive path. Even before the parent leaves the world they want to see their child being independent taking care of their self and doing well. This all will show the parent they did a splendid job as their father or mother. It is not an easy job being a parent and it does not come with an instruction book how to be one but, you can just do the best you can avoiding negative things around your child as much as possible.
In this film Unforgotten: 25 Years After Willow brook we meet several people that have a family member whom is disabled and they share with us moving heartwarming stories of the pain having to give up members of their families to certain facilities because that was what all the experts would recommend at that time. Doctors as well as other family members would all encourage the parents of a child who is developmentally disabled to put the child into an institution and to just leave them there as if they mean nothing to them. There’s even a story of a man who told his family that the
In the video, When Concerns Arise: Learning from Families’ Experiences, parents discussed the feelings they had when they discovered their child was going to have disabilities. Doctors informed them their child would never be able to walk or talk and the child would become a burden on the family. With this being said, many of them felt alone with little support. After the initial shock of learning about their child, and not wanting to believe the doctors, they began to learn and understand their child’s disability. They began to seek help and support from head start programs, teachers, advocacy groups, family members, friends and other families who have children with disabilities.
Parenting is a feat all on it's own, but do most people ever stop to acknowledge the true difficulties underlying the day to day challenges of parenting a disabled child? For most of us, becoming a parent means making selfless sacrifices in order to make time and to simply grow up. Some aren't as lucky to get off that easily. Raising a child with a disability varies in difficulty, but regardless of the case, each parent is required to go above and beyond the average role. More education, more patience, and more attention are just a few of the "extra curricular" duties that go along with raising a disabled child. Unfortunately, the seemingly never ending list of additional responsibilities isn't necessarily the only obstacle for these parents. Certain medical conditions aren't covered by insurance companies due to lack of awareness or simply the state's disinterest in funding a non-profitable cause, leaving these families to fend for themselves.
Now, one should also include lost wages of a parent caring for children with disabilities and how it puts a strain on the income of the family. “These direct and indirect costs have short- and long term economic consequences for people with disabilities and their families, who have lower net worth than other families” (Parish, et al.44).
In this article by Anne F. Farrell and Gloria L. Krahn “Family Life Goes On: Disability in Contemporary Families” discusses about understanding the implications of how disabilities influence family policies and practices. The article outlines how diverse families with disabilities, economic hardship they go through, stress and resilience, and support system within the family. The authors talk about despite the stress and resilience families go through while raising kids with disabilities, they manage by formal and informal support within each other. They state that, “[f]amily interconnections are forged through learning to manage the life challenges that having a disability can bring, and the sense of belonging we derive through family relationships.”
In the article, “My Grandchild has a Disability: Impact on Grand Parenting Identity, Roles, and Relationships,” by Woodbridge, Buys, and Miller seek to address the experience of a disability from a grandparent’s perspective. The role that these grandparents’ take it is very valuable. Grandparents as well as the parents have to adjust their expectations and interactions.
“Overall patterns of adjustment and well-being are similar across families with children with and without disabilities. Thus, families who have a child with a disability are probably more like other families than they are different(Vaughn & Bos, 2015, p. 133)”. Family adjustment is important for any family that hopes to stay together and achieve success in life. Raising children requires constant adjustments as they progress through developmental stages. Parents and siblings of those with learning disabilities or behavioral problems usually require education and training on the disability or behavior. Methods to manage the added stress and extra energy required to care for affected children or siblings are very beneficial.
Sarah and Mike are both parents that are concerned for their baby boy’s quality of life. They are concerned with living with such a severe type of spina bfida due to the disabilities that it will have on their baby boy. Not only will their baby boy be disabled, but it will be challenging to raise a child in a world where there will be other families with children that do not have disabilities. Having a child with a disability can emotionally be hurtful and draining because parents only want what is best for their children and for them to live the most normal lives
From the moment you find out you are expecting a baby, the main thing you want is a healthy baby. However, this isn’t always the case. Millions of children are born with disabilities yearly. Right from the beginning parents and their disabled children face many hurdles and struggles to obtain quality of life. Depending on the child’s disability, certain aspects of the world will be harder for them.
Being a parent of a child with a disability can be a very scary thing; especially, if you do not know how to recognize it. There are a few ways that a parent can identify if their child has a sensory/motor processing disorder. There are five sensory categories/areas in which the child could suffer from, which include tactile, vestibular, proprioceptive, visual, and auditory.
There is surprisingly little known about the ripple effects child disability causes on the family. Population-based research, particularly on demographic or economic outcomes is scarce. Existing studies indicate that having an infant with a serious health condition or health risk increases the likelihood that parents’ divorce or live apart, that the mother cannot work outside the home, and the mother relies on public assistance (Reichman, Corman, & Noonan, 2008). Another study found that parents of disabled children have lower rates of social participation than parents without a disabled child and that they are less likely to have large families (Reichman, Corman, & Noonan, 2008). There is so much more to be learned on the effects on parents,
Comparing to general population, but the people with developmental disabilities can be a diverse group with the level of functioning impairment that may cause by different some sort of congenital chronic conditions that may complicate to mental or physical impairments. There is a large amount of people with developmental disabilities are living in Miami-Dade County, and it projects to be increasing. According to Heasley (2012), in the last United Stated Census, it has reported by the federal agency that there are 56.7 million people had a disability in 2010, an increase of 2.2 million since 2005. The increasing numbers of the people older adults with developmental disabilities will intensify the need for services and supports that allow them to maintain functioning and remain living
While analyzing the article by Parish et. al (2008) the reader could tell that having a child with a disability can cause financial hardships effecting the family’s meals, housing, and telephone services. As the research suggests 28% of children with disabilities are below the national poverty level (Parish et. al, 2008). The research would suggest the biggest barrier for families with a child with a disability would be money. Therefore parents may not be able to pay for services that could benefit their child.
One thing that would be really hard for me if I was a parent in this situation would be the amount of work that goes into caring for a loved one that is seriously disabled. On top of my job, caring for another person would feel like another full time job. I would need to help with every daily task, and can see how if parents were not given a break it would be easy to get burnt out. In the article one family said that it felt like they were drowning so they resorted to using the emergency room. To be so stressed, and have so much going on that you feel like you are drowning. To me that would be one of the hardest things. It would be easier if I could fine someone to help lighten the workload. If there was a caretaker to provide and extra pair of hand it