The purpose of this paper is to synthesize and analyze journal articles related to the etiology of parental psychiatric conditions of children with autism spectrum disorders (ASD) and the development of psychiatric conditions after diagnosis; and how the two are interrelated and cyclical.
Parents of children with ASD encounter a variety of unexpected- emotional, physiological, and financial challenges in their lifetime. Parents of children with autism spectrum disorders often have “elevated levels of depressive symptoms and psychological distress” (Meltzer, 2010, p. 362) and are at “a heightened risk for mental health problems” (Ingersoll & Hambrick, 2011 p. 337) not only compared to parents of neurotypical children; but also in contrast to parents with children with Down syndrome, an intellectual disability, fragile X syndrome, and development delay (Meltzer, 2010; Ingersoll & Hambrick, 2011).
Background Information
The rate of autism spectrum disorders has risen exponentially in the past forty years from 1 in 10,000 in the 1970s, to 1 in 1,000 in 1995, to a staggering 1 in 68 today; (CDC.gov) which means many families are impacted and coping with this devastating disorder. (CITE)
In 2013, the Diagnostic and Statistical Manual of Mental Disorders, fifth edition (DSM-V) combined four previously individual diagnoses that all had deficits in two primary areas: (1) “social communication and social interaction,” and (2) “restricted repetitive behaviors, interests, and
Financial burdens are an obvious upset to families with autistic children, on top of the already heavy expense of having a child there is now medical costs and often counselling. Sen and Yurtsever (2007) reported that families often feel “shock, denial, suffering, depression, guilt, indecision, anger, shame, bargaining, acceptance and adaptation” upon discovering they have a child who suffers from ASD. This disorder has effects on their daily “lifestyles, social relationships, economic situation, health, and goals or expectations for the future” (Norton & Drew, 1994; Sen & Yurtsever, 2007). “Autism is the most common neurological condition diagnosed in children and it is now
Having a child given a diagnosis of an Autism Spectrum Disorder (ASD) is a very stressful event for parents. It is imperative to understand that there is much that can be done for both parent and the child. From the current literature we know that parents of children diagnosed with autism worry about many things like lifetime dependency to family dissonance. We know that these parents are distressed and angry, the parents of children with more unusual behaviors feel a lot more stressed than the parents of children with fewer unusual behaviors. However, having a strategy to approach it correctly and to get the best possible help for your child is probably the most important step, one can take to relieve stress and to aid the child’s development.
But the earlier they get help the better, there are signs that can be fallow to be in the alert to see if a child has it, so they can start getting help early. According to the Centers for Disease Control and Prevention 1 in 68 American children are in the autism spectrum it has increased by about 30% since 2012 (Ph.D., K. J. nod). As a mother with a child in the spectrum, I will also be sharing some experiences and challenges my son and family go thru, the struggles and happy moments as well. Autism is a spectrum that affects people differently, this disorder is affecting more people each year, I will like to raise awareness, by stating facts and sharing all the helpful information one should know.
The goal of this review was to examine ASD and how it has impacted families. The literature was consistent in its findings, which stated that, Autism is a complex disorder that is diagnosed in childhood and has a wide range of symptoms. Many of the studies showed that children with ASD have the same symptoms such as hyperactivity, anxiety and self-injurious or aggressive behavior. The initial autism diagnosis leaves parents and siblings confused and they may have a hard time accepting that the child/sibling they were anticipating is not the child/sibling they expected. This transformation in their family can impact the relationship in the family, as feelings of fear and worry overwhelm the family system. ASD impacts parents and siblings as it changes the dynamics of the family. It is significant for families to find coping mechanisms that work for them as they
In the early 1900’s autism was a completely misunderstood concept and any child who was living with it was assumed to be living with “childhood schizophrenia” and developed much slower than children without autism. A four year study of Donald Triplett gave Dr. Kannar a better understanding of what autism was and what it caused certain people to do. The main question was, does it affect the child’s development? Living with autism can affect a child’s development due to the fact that they don’t have a long attention span, can cause them to have a repetitive behavior, along with trouble in social situations whether it be verbal or non verbal.
A pilot study by McLeod (1999) over three years, with a sample of eight adults, using case studies and both qualitative and quantitative methods of research (including questionnaires, interviews and follow-up) described parents of individuals on the Autism spectrum, as ‘the
This hardships and struggles were focused on their child’s tantrums that are present in the condition ASD and how they cope up with it. Participants also described having to make lifestyle transitions in their life. One lifestyle transitions affected their careers for them to focus more in taking care of their child. Family activities and relationships with their non-affected children was also affected being involved in a child with autism. It was shown in the study how autism spectrum disorder give an impact in the primary caregivers’ life and his/her family. The findings suggest that professionals need to engage more with families when conveying a diagnosis of autism, particularly with families that is financially unstable. Thus, the findings suggest that there is a need to inform the future families who may experience the involved responsibilities of having an autistic child.This study gave several recommendations to three particular subjects the Families /Primary Caregivers, Government and the Community. All these subjects are selected for the enlightenment of this topic which is autism spectrum disorder(ASD). The findings from this study therefore provide hope and encouragement for parents of children with autism in particular, but also for parents raising children with intellectual disabilities
2013). The correlation between anxiety disorder among parents and symptoms of anxiety in their children with ASD has only recently begun to be associated with one another. There is indications that parents of children with ASD are more likely to have mood disorders, including anxiety disorders, when compared to people that don't have ASD. Studies have also found that anxiety symptoms among parents typically predates birth of the child with ASD, suggesting that higher rates of anxiety problems in parents are not due, at least not entirely, to the increased stress of raising a child with ASD (Conner, C., Maddox, B., & White, S.
Research suggests that regardless of IQ, a majority of adults with ASD remain dependent upon their families or other services for support in adult life (Howlin, Goode, Hutton, and Rutter, 2004). In 2011, an estimated 71% of individuals with a developmental disability lived with a family caregiver (Braddock et al., 2013). Despite a this large percentage of individuals depending on their families for lifetime support, more than half (51%) have begun making plans for the long-term care of their son or daughter with a developmental disability in the event of a family crisis such as the failing health or death of a parent (Kaufman, Adams, & Campbell, 1991). Given the growing prevalence of ASD, the aging of adults with ASD, along with their continued reliance on caregiving support, it becomes important to not only identify the needs of this population but also how parental caregivers experience the task of permanency planning for their adult child with ASD. Permanency planning is the process of procuring long-term services for a person with a developmental
As research into autism spectrum disorders has increased over recent years and this has resulted in changes to the way that American psychiatry diagnoses autism spectrum disorders. The Diagnostic and Statistical Manual (DSM) is used by clinicians as a guide to diagnoses of mental health illnesses and since its first publication in 1930’s it has been updated every 20 years, and these updates reflect on new research and discoveries.
Karst, J., & Hecke, A. (2012). Parent and Family Impact of Autism Spectrum Disorders: A Review and Proposed Model for Intervention
There is comprehensive evidence that shows parents and caregivers of children with diagnosed Autism Spectrum Disorder (ASD) experience mental health issues including high risk of depression, anxiety, and familial stress (Whitehead, et al. 2015). These behaviors can coincide with positive experiences of caregiving (Whitehead, et al. 2015).
Nevertheless, it would be easy to believe that half of our population can fit in a mental disorder because the DSM has become broader making continuum of disorder, thus if somebody is not entirely bipolar, he/she might fall into the depressive category. Similarly, it happens with Autism, Aspeger’s, and Pervasive Developmental disorders that have been integrated into a single Autism Spectrum Disorder. Now, the impact of a diagnosis can be more profound for a parent since the cause and the cure of autism are unknown. For a child that is high functioning, has good academic standing and has some social abilities, it is more hopeful to call him Asperger than to call him autistic. There are many stories of Asperger or PDD children that through ABA therapy have been able to succeed at school and create a richer social life. However, not many of these stories are told about low functioning autistic, so this could produce more negative emotions on parents than what the way it was
Autism is a disorder that can wreck havoc in the lives of many, and all it takes is one diagnosis. Most families never expect autism to occur in their family. But once it does, the family will never imagine the effect it will have. The family of a child with autism “[is] faced with intolerable mental, economic, and social pressure” (Mosayebi 4). Could a child with autism have a substantial enough effect on the family to cause separation and divorce of their parents?
In 2011, the Center for Disease Control and Prevention found that on average, 1 in 10 children each year are diagnosed with autism spectrum disorders (Hunt & Marshall, 2012, p. 304). However, the number of children diagnosed with autism in recent years is