National Association for Down Syndrome The National Association for Down Syndrome is governed much like a traditional corporation, with a board of directors and staff members, although it is a nonprofit. "NADS is the oldest organization in the country serving individuals with Down syndrome and their families. It was founded in Chicago in 1961 by parents who chose to go against medical advice and raised their children with Down syndrome at home" (About NADS, 2012, NADS). From its inception, NADS was designed to provide support for parents of children with Down syndrome and their offspring. Its key stakeholders are parents and children, and it strives to educate the larger community about the disorder and to cultivate community resources to better enable parents to raise their children in a supportive and loving environment that caters to the children's special needs. Information-gathering and dissemination, support, and advocacy on a national and local level are all part of the organizations' mission. "The direct support we provide to families through our Parent Support Program, our Mentoring Program, the Work Experience Program, and other individualized services is at the core of our mission" within the Chicago area, where the governing body of NADS is based (About NADS, 2012, NADS). However, "we do not have the staff or the resources to provide those services outside of the Chicago metropolitan area" (About NADS, 2012, NADS). For the wider community outside the
The York Area Down Syndrome Association (YADSA) is an association that supports families whose children have Down Syndrome. YADSA has partnered with York College of Pennsylvania for an incredible event where I had to opportunity to work with a student with Down Syndrome over two events. I worked with Kira, she is a high school student that is shy at first, but quickly comes out of her shell. She is a silly and outgoing person, who loves cheerleading, science, and Disneyworld.
On September 10, 2011, Gilberto Powell, a Down syndrome man, was walking home from his friend's house, less than one block away from his own home, when he was stopped by two Miami-Dade police officers. The officers had stopped him due to their suspicion that Powell had a weapon on him. What the two officers believed to be a weapon was simply a colostomy bag that Gilberto wore on his waist. The officers tried to do a pat-down search of the 22-year-old man. Gilberto became frightened by the two officers and pushed off the car in an attempt to flee to his home. Police say that they gave multiple commands for him to stop moving, when he fell on the ground and hit his head. He still tried to escape by hitting one of the officers in the chest. The officer then struck Gilberto in the face with an open hand in an attempt to subdue him. He was then handcuffed. The officers then forcibly removed the colostomy bag.
There is no single, standard treatment for Down syndrome. Treatments are based on each person's personal needs, limitations, and strengths. A child with Down syndrome would likely receive care from a team of health professionals, which includes physicians, special educators, speech therapists, occupational therapists, physical therapists, and social workers. “Early intervention” refers to a range of specialized programs and resources that professionals provide to children with Down syndrome as well as their families. A variety of therapies can be used in early intervention programs to promote the greatest possible development, independence, and productivity. Some of these therapies include physical therapy, speech-language therapy, occupational
First and foremost, the NDSS is resourceful. They offer a variety of groups and events to help those with Downs and their families. Every year, the National Down Syndrome Congress has a convention for people who are interested in staying active in the world of Down syndrome. For example, a few summers ago there was a session in Boston, and the number of people in attendance is astonishing.. “These popular sessions, facilitated by family members, are informal opportunities to meet your peers and share your joys, concerns and strategies with others” (General Convention). People are
Down Syndrome is a genetic disorder that occurs when a persons 46 chromosomes abnormally divides into 47 chromosomes, creating a full or partial 3rd copy of the chromosome 21.
Down syndrome (DS) caused by trisomy 21 is the most common human aneuploidy and occurs approximately in 1 in 700 live births. Individuals diagnosed with DS display a wide range of clinical phenotypes including cognitive impairment, mental retardation, craniofacial abnormalities as well as increased risks for congenital heart defects, gastrointestinal tract abnormalities including Hirshsprung’s disease, with the presence or absence and severity of these features varying amongst the individuals. Proper formation of the craniofacial skeleton is important for the normal development of the brain, sensory organs and functioning of the digestive and respiratory tracts and is derived from neural crest cells.
The Global Down Syndrome Foundation Is a public, non- profit organization that is a resource for Down syndrome and is involved in research medical care an education and advocacy of people with the condition. The organization provides information on the history of the condition including revolutionary genetic testing and advances in testing. The foundation also provides resources for pregnant mothers, families, medical personnel and educators.
Down syndrome is an intellectual disability that is a result of a person being born with an extra chromosome, specifically chromosome 21. Down syndrome is the most common intellectual disability affecting approximately 1 in every 1000 births (Asim, Kumar, Muthuswamy, Jain, & Agarwal, 2015). Research has found a direct link between the age of the mother and the possibility that the baby will be born with Down syndrome, with the occurrence of Down syndrome increasing proportionally with the increased age of the mother (Asim, 2015). This condition can cause both intellectual (cognitive) and physical impairments that can range from moderate to severe (Crosta, 2016). People with Down syndrome have physical impairments such as a flat face, little to no neck, small ears, slated eyes, shorter than normal limbs and they tend to have low muscle tone (Asim, 2015). Children with Down syndrome tend to have a slower development of natural movements such as sitting, crawling and walking (Crosta, 2015). Intellectually people with Down syndrome tend to have a below average intelligence and most often they need extra assistance when attending school (Asim, 2015).
mother could have a Down Syndrome baby even though there was never any sign of
Due to the nature of the condition, individuals with Down syndrome face a bountiful array of difficulties with language and communication. Down syndrome occurs due to an extra copy of the twenty-first chromosome causing intellectual and developmental delays as well as abnormal physical characteristics. With the highly complex nature of human speech, these physical characteristics of individuals with Down syndrome cause many challenges in accomplishing clear and audible communication. The following paper will discuss specifically the articulation and auditory challenges that individuals with Down syndrome face during speech.
Down Syndrome is the most common genetic disorder in the United States. It was first described in 1866 by John Langdon Down. The actual cause of Down Syndrome or Trisomy 21 was discovered in 1959. In the United States 1 in every 800 kids will be diagnosed with
You can’t do most of the things that a normal person could do. Such as driving, doing simple tasks on their own, they don’t know some of the basic things. Some people with down syndrome don’t know right from
According to Down syndrome (2018), “Down syndrome is a chromosomal condition that is associated with intellectual disability, a characteristic facial appearance, and weak muscle tone (hypotonia) in infancy.” Apparently, every single affected individual will experience cognitive postponements while the intellectual disability generally mellow to direct. For example, influenced people's discourse and dialect grow later and more gradually than in youngsters without Down disorder, and influenced people's discourse might be harder to get it. Behavioral issues can incorporate consideration issues, over the top/enthusiastic conduct, and determination or fits. A little level of individuals with Down disorder are additionally determined
In 1980, Sue Buckley and Gillian Bird were prompted to begin investigating the reading skills of children with Down’s Syndrome after receiving a letter. The letter was from a parent of a daughter with Down’s Syndrome that was able to learn to read at the age of three. This discovery led Buckley and Bird to design an experiment centered on this hypothesis: “pre-school children with Down’s Syndrome could learn to read and reading might be a ‘way-in’ to language for these children,” Down’s Syndrome is a genetic disorder that occurs when an additional full or partial copy of chromosome 21 is present in an individual. This disorder causes both developmental as well as cognitive delays.
Another sign of down syndrome is always having colds, sinus nifections, and ear infections constantly. Down syndrome is not something thay runs in the family. Downsyndrome is desease that occurs randomly. Downs is a disesase that has been around for years and there is no cure for the nasty disease. People that get downs have an extra chance of getting other medical diseases and med problems. Life expectency for people with downs has increased dramatically in the passed decades. People with downs play roll in the everyday life just as anyother person in the world. They vote, work, play, go to church, and even drive. They live no different then the average american. Every person that gets downs is different the another with downs. One can need help in a bad way with medical attention and others lead fullfilled healthy lives. A woman at the age of 30 having a kid has a 1 in 1000 chance of her kid having downs. If a woman at the age of 35 has a child, she has a way greater risk of her kid getting the downs. At the age of 40 having children theres a great chance of getting downs, at the age of 40 theres a 1 in 100 chance of there child getting