1.1 The increasing numbers of vulnerable adults in the United Kingdom has been accompanied several care challenges and policy makers caught their attention to do their part and come up with legislations to combat or overcome these challenges. Giving support and providing care for an individual in their last stage or end of life is a difficult thing to do. End of life care aims to put the person at the centre of the caring process, they should be involved in every decision to make when it comes to their personal care, maintain and enhance quality of life for the person involve and family if possible and provide bereavement support for families and carers after someone passed away. In lieu to this, this will not be possible if not being back up by legislation to oversee that quality care is delivered at the highest possible. The end of life care strategy implemented by the Department of Health 2008 outlined a framework which aims to promote high quality of care for all adults in the United Kingdom who are at the end stage of their lives (The National Council for Palliative Care, 2012). This strategy focuses on the following factors: being treated as an individual, with respect and maintaining dignity, being without pain and other symptoms, being familiar with the surrounding and being with close friends and immediate family. The Care Quality Commission which regulates and monitor treatment, support and care provided by hospitals, GP’s, ambulances and mental health
Caring for patients at the end of life is a challenging task that requires not only the consideration of the patient as a whole but also an understanding of the family, social, legal, economic, and institutional circumstances that surround patient care.
Understand the requirements of legislation and agreed ways of working to protect the rights of individuals at the end of life
The World Health Organisation (2010) defines palliative care as: An approach that improves the quality of life of patients and their families facing problems associated with life threatening illness, through the prevention and relief of suffering by means of early identification and impeccable assessment and treatment of pain and other problems, physical, psychosocial and spiritual. It is also our duty to support John and his wife`s in their decision for John to die at home, Department of health (2008) patients should have a choice over the care they receive and where.
.“As medical technology continues to advance and health care choices become more complicated, the preservation of end-of-life autonomy is an increasingly important issue faced by various client populations.” (Galambos, 1998).
Dr. Ira Byock’s latest book, The Best Care Possible: A Physician’s Quest to transform Care Through the End of Life, is a remarkable book written from a personal perspective as one of the foremost palliative-care physicians in the country. Dr. Byock shares stories of his experience with patients in his clinical experience to illustrate how end-of-life care affects each person. He explains what palliative care really is and how to make humane choices in a world obsessed with conquering death. Byock presents an agenda for end-of-life care that stresses compassion, dignity, and each patient being viewed as a unique case with the opportunity to partake in shared decisions amongst a team of professionals and family members. Dr. Byock is an advocate of dying well in a society marked by a fear of death; his highly personal account provides thought-provoking vignettes of how people struggle to make the right decisions in the winter of their lives. Byock urges society to embrace the reality of death and transform the medical community into an environment that will allow patients to live the last of their days in comfort with dignity and peace. This book is a vitally important piece of literature for everyone to devour with fervor. Everyone needs to understand the inevitability of death and the environment end-of-life care can present in what will be the final moments of life.
The Care Quality Commission makes sure that hospitals, care homes, dental and GP surgeries, and all other care services in England provide people with safe, effective, compassionate and high quality care, and they encourage these services to make improvements.
Death is inevitable. It is one of the only certainties in life. Regardless, people are often uncomfortable discussing death. Nyatanga (2016) posits that the idea of no longer existing increases anxiety and emotional distress in relation to one’s mortality. Because of the difficulty in level of care for end-of-life patients, the patient and the family often need professional assistance for physical and emotional care. Many family caregivers are not professionally trained in medicine, and this is where hospice comes into play. Hospice aims to meet the holistic needs of both the patient and the patient’s family through treatment plans, education, and advocacy. There is a duality of care to the treatment provided by hospice staff in that they do not attempt to separate the patient’s care from the family’s care. Leming and Dickinson (2011) support that hospice, unlike other clinical fields, focuses on the patient and the family together instead of seeing the patient independent of the family. Many times in hospitals, the medical team focuses solely on the goal of returning the patient back to health in order for them to return to their normal lives. They do not take into account the psychological and spiritual components of the patient’s journey and the journey that the family must take as well. For treatment of the patient, Leming and Dickinson agree that hospice does not attempt to cure patients, and instead concentrates solely
The Institute of Medicine (IOM) September 2014 Report brief- Dying in America: Improving Quality and Honoring Individual Preferences near the End of Life addresses several necessities regarding end-of life (EOL) care. These necessities include; the needs and opportunities for improving EOL care, delivery of patient-centered and family-oriented care, clinician-patient communication and advance care planning, professional education and development, public education and engagement, as well as policies and payment systems to support high-quality EOL care. Taking care of the family and the patients near the end of life requires professional commitment and responsibility from all health care professionals including clinicians, clergy, caregivers, and support staff. The health system managers, payers, and policy makers also have obligation to make sure that EOL care is compassionate, affordable, sustainable, and high quality as possible. The IOM report point out that there has been a broad improvements towards the
The main objective of healthcare professionals is to provide the best quality of patient care and the highest level of patient safety. To achieve that objective, there are many organizations that help improve the quality of care. One of the best examples is the Joint Commission. Unfortunately, the healthcare system is not free from total risks. In healthcare activities, there are possible errors, mistakes, near miss and adverse events. All of those negative events are preventable. But, it is clear that errors caused in healthcare result in thousands of deaths in the United States.
The purpose of this assignment is to demonstrate understanding of long term conditions and palliative care. Nursing care in general entails holistic care and collaborative care of individuals of all ages, families, groups and communities, whether sick or well (Royal College of Nursing, (RCN) 2007). Better management of lifelong conditions has been the priority of the National Health Service since the 1990s. When long term conditions are managed well in the community, patients’ can live a quality life without visiting hospital frequently (RCN, 2011). In Britain, six in ten people are reported to be suffering from long term conditions that currently cannot be cured; and these people are often suffering from more than one condition that makes their care challenging. It is estimated that by 2030 the UK will have double the number of people aged 85 years or over, who are living with one or more long term condition (Department of Health, 2014).
Key people could be family, doctors, carers, religious leaders etc. Each may own distinctive role to play in order for the choices and preferences of the individual to be respected and carried out. [ Every person’s end-of-life trajectory is different and needs differ in intensity and quality over time. End-of-life care must adapt to the varying and changing needs of the individual over time and that it cannot be limited to certain settings or services. The provision of good
This ensures that all organisations under their watch are working to a set of rules and regulations that apply to them. They regulate the care given and inspect institutions to ensure that optimal care that conforms to
Caring for patients at the end of life is a challenging task that requires not only the consideration of the individual as a whole but also an understanding of the
A person’s life can end at any age. They can depart quickly or slowly. End of life care, also known as palliative care, is the care of patients that are not only in their final hours or days but the patients with a terminal illness that has become incurable. End of life care takes into mind what the patient desires so it is recommended that they consider an advanced care plan also known as an advance directive and living will. These documents allow the patient to formulate decisions on the future of their care if, at any point, they cannot vocally express themselves.
3. Palliative Care Council of South Australia. (1996). Good palliative care project: final report. Retrieved September 4, 2002, from Palliative Care Council of So