Hospice Utilization in the Workplace
Hospice and palliative care are still new concepts to many that come into the facility. While the process and the goals of palliative and hospice care can be described to the patients and family members, the terminology and interpretation may be challenged by their previous beliefs and ideologies. However, after careful counseling and education, many family members agree to undergo hospice or palliative care at the appropriate time. Considering that five years ago, hospice utilization in the workplace was scarce in comparison to today where there is an entire unit devoted to promoting palliative and hospice care, it can be said that these new forms of care are becoming accepted practices with favorable
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However, it is not a perfect system and what may seem favorable for one person, may not be desirable by the next. This situation often occurs between the nursing staff and family members and tension often forms from this basis. Often family members will refuse a certain method of treatment because of a previous fixed belief that had an unfavorable outcome in the past. Additionally, they may refuse certain methods of care because they believe they bring about a convenience for the nursing staff and instead opt for the most hands-on approach which may be potentially more harmful. The result is often paternalism in which a nurse will be acting for patients without their consent to secure good or prevent harm (Taylor et al., 2011). Such situations that often arrises are when family members insist that their loved one is able to eat foods of regular constancy despite that compelling evidence that this person has difficulty tolerating such foods. Often times, the family members deny this claim and are presented with the challenge of accepting the declining function of their loved one with Alzheimer's disease. This scenario then results in the nursing staff acting for the good of the patient without their consent. This constant moral stressor for the nursing staff places a toll on their morals and values that fortunately has always resulted …show more content…
What was once believed to be a form of neglect has resulted in a change in practice with the idea that doing less is more. Culture is an important factor in how care is rendered and thus, the limitations of palliative and hospice care lie within the desires of the family and patients. A thorough understanding of our surrounding demographics helps to ensure a seamless approach to providing care without bias or imposition of ones beliefs. However, just as with all things, providing care for the sick and comforting the dying should be rendered in moderation as to prevent the effects of burn out. Likewise, the same effects occur in the caregivers who sacrifice their responsibilities in order to care for their love ones. Finally, and with some closing thoughts, the writer wishes to express with gratitude the benefit of having taken this course to better understand oneself and others in the realm of healthcare. The lessons learned throughout have expanded this writer's knowledge and understanding of the human desire to make a connection through communication, emotion, compassion, and spiritually - the platform from which this writer wishes to continue seeking further knowledge and
My perception of palliative and Hospice care has changed slightly when it comes to communication with the family. I walked into the hospice unit mentally preparing myself to talk with patient families about their loved one and the dying process; this was certainly not the case. The family and the patient did not want to be bothered unless comfort interventions needed to be carried out and there was no conversation to be had about the patient and his situation. This shows that each family is different, each patient is different; and we need to respect and accommodate their unique
Death is inevitable. It is one of the only certainties in life. Regardless, people are often uncomfortable discussing death. Nyatanga (2016) posits that the idea of no longer existing increases anxiety and emotional distress in relation to one’s mortality. Because of the difficulty in level of care for end-of-life patients, the patient and the family often need professional assistance for physical and emotional care. Many family caregivers are not professionally trained in medicine, and this is where hospice comes into play. Hospice aims to meet the holistic needs of both the patient and the patient’s family through treatment plans, education, and advocacy. There is a duality of care to the treatment provided by hospice staff in that they do not attempt to separate the patient’s care from the family’s care. Leming and Dickinson (2011) support that hospice, unlike other clinical fields, focuses on the patient and the family together instead of seeing the patient independent of the family. Many times in hospitals, the medical team focuses solely on the goal of returning the patient back to health in order for them to return to their normal lives. They do not take into account the psychological and spiritual components of the patient’s journey and the journey that the family must take as well. For treatment of the patient, Leming and Dickinson agree that hospice does not attempt to cure patients, and instead concentrates solely
This is recognized to be an issue, and throughout the article the authors provided an understanding of how palliative care and end-of-life care are provided too late for a patient and should be provided at an earlier time in order to bring more comfort to the patients. The authors suggest that when and how end-of-life care is provided should be altered, with nursing ethics in mind, so that patients and nurses may feel better about the care they receive. This source will help my research by providing information on how changing the policies of end-of-life care and palliative care can result in the patient feeling a relief from their suffering and ultimately feeling more comfortable. This will also help my argument in how altering the current policies and focusing on providing better end-of-life care can lead to the diminishment of physician-assisted
Hospice bereavement programs focus on different aspects for family members. One is in helping family members to understand and move forward in the grief process. In order to do this, they must express their inner thoughts and feelings, but also, one must help them in identifying or developing and utilizing healthy coping strategies. This leads families into using this program to help them solve the problem and adjust towards the loss of their loved one. Also, it is essential to give guidance and assist these family members in decisions relative to the loss. Another factor that should be addressed is cultural and spiritual concerns because it is an important value in most people’s lives. In understanding the family member’s spiritual and cultural
The present-day misconception of palliative care possibly comes from the circumstance that palliative care was used interchangeably with hospice care until the 1980s. (Clark & Seymour, 1999). Clark and Seymour (1999) extensively write on the beginnings and evolution of palliative care. They describe the progression of palliative care as a whole and explain the movement from palliative starting out as supplemental care to terminal patients to the concept division of palliative and hospice care. They describe the differences in each and explain why palliative is its own concept that differentiates from hospice care. In 2002, the World Health Organization defined palliative care as “an approach” that increases the quality of life of
I do home health CNA jobs and trying to get in to be a CNA in a hospice home health and later on, I would like to be a visiting nurse to a hospice patients. I conducted an interview to one hospice psychologist I know and the information I’ve learned is intense and I’ve realized that I wanted to know more about this field. So what is hospice? Hospice is a program of care for terminally ill patients and their love ones; it’s a program about life and about living life to the fullest until the end. One professional that can help what’s they are going through is psychologist. They assessed what the patient and family needs and help them to understand and evaluate the options that meet their needs. Many psychologist have compassion working on hospice,
You have made excellent points. I do not believe that health care professionals neglect to treat patients in palliative care in the correct settings. The care one receives is based on what type of locations they are in. Hospitals and hospice centers often have employees with higher education levels and an increased passion for their job. I believe that health care providers want to ensure that one is comfortable at the end of life. I have visited Alive Hospice here in Nashville and was able to see the the great amount of care they provided to their patients. I have attached a link to their website below. I am curious to know your opinion on why you think one would not receive adequate care at the end-of-life phase.
For decades each field of medicine and the treatment of patients have been singled out and looked at as an independent specialty. This is not only the case in the United States but also in the United Kingdom. Recently different fields have begun to explore the possibilities that they are more similar to one another than different, and that Hospice Care is more than care for the terminally-ill cancer patients.
Gelfman et al. reviewed the literature before beginning this quantitative study. The previous study has shown that hospitalized patients with terminal illnesses and their families need care to alleviate physical distress, help making decisions, improvement in relationship between patients and their families, and the reduction of the family caregivers’ burden. Another study found that comparing with people dying at home, people dying in healthcare settings had unmet needs they wanted. The prevalence of terminal illnesses and the family caregivers’ burden have created an enormous demand for expert palliative care. Unfortunately, the scientific knowledge of palliative care is limited. Gelfman et al. (2008) stated that the impact of hospital palliative care programs on surviving family members is not well studies, while the previous studies have explored that the burden in families of patients with terminal illnesses are significant high. Therefore, Gelfman et al. conducted a quantitative study to examine the impact of a hospital palliative care
According to Communicating Health, hospice provides terminal patients with what is often referred to as the “good death;” it does not provide preventative or curative care, but instead focuses on the comfort of the patient. Rasmussen and McMenamin discussed this in further detail when detailing one of their responsibilities as social workers, making the patient’s final wishes a reality. While again this may sound depressing to a majority of the outside world. McMenamin smiled brightly, with fond memories, of those who aspired to continue gardening or see their children marry. As with all things, there were not always fond memories. McMenamin and Rasmussen expressed that they as hospice workers see patients at their worst. Sometimes they find that individuals they are providing care for were abusive to their families. Another negative side, they showed us was the wish cards. The cards detailed some of the things people wish for in hospice care (to be kept clean, not being a burden to their family, and not dying alone).
Professional caregivers who care for the dying must professionally employ high level technical skills while maintaining a compassionate focus on the problems facing the dying person and their families, often immersed in institutional politics, all the time suppressing their own anxieties. Meanwhile, providing a supportive environment that meets the needs of the terminally ill individual with confidence, whilst cultivating trust and feelings of dignity in the dying patient (DeSpelder & Strickland, 2005, 2015).
Hospice is a concept of care that is based on the belief that meaningful living is achievable during a terminal illness that is free of interventions that prolong physiologic dying. The role of a hospice nurse is to take on a holistic approach to patient care that involves a careful evaluation of not only physical problems but also the psychosocial and spiritual dimensions of the patient and the patient’s family (Hinkle & Cheever, 2014). The hospice nurse is culturally aware and sensitive in their approach to communication that respects beliefs, attitudes, and values of the patient and family about end-of-life care. The hospice nurse also provides support to families even after the death of the patient (Nies & McEwen, 2015).
The ability for a patient to qualify for hospice care is based on the physician’s determination that their illness is not responding to treatment and the patient has 6 months or less to live. Illnesses that require hospice care in the adult population take a more predictable pattern than in pediatric and perinatal patients. This is not to say that the process of hospice care and dying is easier for the patients, their families, or the hospice team, but that there is more research in how to prepare for such care. Non-hospice nurses have a stronger foundation and better understanding of death and dying with regard to patients at this stage of life that allows them to be better equipped to initiate discussions of hospice care. It takes special training in psychosocial support to give adequate hospice care, but the base knowledge of nursing is more prepared for discussing end-of-life-care with older patients than with children. It is this ability to communicate that allows them to build the rapport that is crucial to improving the quality of dying.
They make decisions pertaining to the patient’s needs in consultation with medical experts. Having a loved one with a terminal illness can be stressful and demanding. This is where hospice care comes in. Most hospice care providers make regular visit to the patient’s home and provide additional care and support as necessary. Due to the nature of the illness, hospice care providers are on call 24 hours, seven days a week. The hospice care providers along with doctors, nurses, dieticians. Physical and occupational therapists, counselors, social workers, create a plan tailored to meet the patient’s needs. Although most patients receive hospice care at home, this is changing. Long term care facilities have also started providing hospice care services for patients, especially with illness like advanced/terminal cancer, dementia
Good post this week. Dying is a normal part of life, but death is often treated as a disease. As a result, many people are suffering alone, to die in the hospital. Palliative care is primarily focused on treating the symptoms of patients with diseases that threaten the expected prevention, diagnosis, and patients with serious or life experience, and to help their families is an important medical decisions. The ultimate goal of treatment is to improve the relaxation regardless, both patient and family quality of life for the diagnosis. Although palliative care approach to end of life and keen role of palliative care focuses aggressive symptom management and psychological focus on social support, unlike hospice care, it does