Great post Anthony! I liked your take on the strengths and weaknesses of DTC genetic testing. I also agree with you in terms of having an infrastructure in various health systems to handle genetic counseling to patients and consumers. Genetic counseling should be about patient self-efficacy and empowerment. This debate between government regulation and medical advancement is not new. Every approved drug on the market today is a product of this balance between the government and industry. But there is something about DNA and genetic information that many of us are still trying to understand in terms of its social, ethical, and personal impact. While there are laws aimed at protecting genetic information, like GINA, there is a gray area that
The traditional idea of American friendship has evolved drastically over time. In this age, no longer do you see the close group of friends chatting at the ‘Central Perk Café’ or engaging in many misadventures in the basement of Foreman’s house, such as they did in ‘That 70’s Show’. The aged image of a group of friends and their wise, perceptive teacher, Mr. Feeney, happily standing in the halls of John Quincy Adams middle school is fading out. This overused 1970’s-1990’s idea of friendship no longer applies to most American friendships today because our culture has swayed into a more modern viewpoint, due to the
Curley's wife's death is presented through irony; a structural choice that Shakespeare also uses to build up Lady Macbeth's death. Curley's wife's constant require for attention, and some could even say self-obsession was her downfall, which resulted in her death. After Lennie began to forcefully play around with her hair, Curley's wife repeatedly told him to not ‘'muss it up'' (mess it up), but Lennie didn't know much and ended up accidently killing her. This is significant as Curley's wife's physical appearance was everything to her and, maybe, if she just allowed Lennie to play with her hair for a while, after all, she did give him permission to stroke it, and not been so bothered about it being messed up a bit; then maybe she would have still been alive for the
The view over genetic testing starts with establishing necessary definitions and discussing its purpose in our world. To start off, the human body is a complex multicellular system. Every cell in the body is comprised of the same DNA (with some exceptions), which stores our genes. These genes are the set of instructions that encode the proteins necessary to create and maintain the human body. The issue is that some genes can undergo a variety of mutations during development that cause an array of complications or disease. Gene therapy can modify the designated abnormal genes to reach normalcy, while genetic engineering focuses on enhancement and surpassing what is normal. However, the goal of genetic testing is to identify the abnormalities
I do not believe that “direct-to-consumer” genetic testing is wise, especially without the involvement of trained professionals or set guidelines. As mentioned in the prompt, some of the risks that I believe are important involve the ethical and social challenges direct-to-consumer testing can create as well as the complexity of certain genomic tests.
It is patients’ right to opt for genetic testing on their own DNA, although they are accepting a great risk by doing so.
The Human Genome Project is the largest scientific endeavor undertaken since the Manhattan Project, and, as with the Manhattan Project, the completion of the Human Genome Project has brought to surface many moral and ethical issues concerning the use of the knowledge gained from the project. Although genetic tests for certain diseases have been available for 15 years (Ridley, 1999), the completion of the Human Genome Project will certainly lead to an exponential increase in the number of genetic tests available. Therefore, before genetic testing becomes a routine part of a visit to a doctor's office, the two main questions at the heart of the controversy surrounding genetic testing must be
If the genetic information is only accessible to the individual then there is a decreased chance of such discrimination occurring because the information is disclosed to who the individual wishes to. Genetic information can raise questions about personal responsibility, personal choice versus genetic determinism, and concepts of health and disease. Personal factors, family values, and community and cultural beliefs can mould the reactions to these issues. For example the response to the genetic information and suggestion from physicians after the test will be drastically different in a society where traditions and religion determine life choices, such as India, than to a more individually liberal society like the USA. Even in a progressive society that has had specific ethnic groups for multiple generations disparities with medical technology are common. A study conducted, using the national representative data, in the USA with the sample that consisted of 1724 men and women of non-Hispanic whites, Latinos, and African American background. Results exposed significant differences by racial/ethnic groups in knowledge and concerns about the potential misuse of genetic testing. Significantly higher levels of mistrust in a physician and the medical system was a common thread within minorities. The genetic tests can be a way of ridding anxiety attached to the assumed inheritance of genetic disease due to family background whilst for others the genetic test reveals their reality. The results can have a great deal of a psychological impact upon the individual. The possibility of developing a genetic disease alone can create anxiety within some. The psychological impact from the results revealed is another issue that society is concerned about. A
Genetic testing has become a highly controversial issue among both the general population and the scientific community. It is a process that exposes a person’s entire genome sequence, allowing it to be read and evaluated to identify potential risks for genetic diseases or diseases that could be passed onto offspring (Holt Productions, 2012). With thousands of genetic tests already being used, and more being established, it seems logical to put this growing technology to use. Some agree that it is a person’s right to know and understand his or her genetic makeup. However, others argue that, despite the benefits of genetic testing, caution should be used to carefully inspect the risks associated with this new technology.
Consumers have the right to learn and obtain information about their personal genome and its potential implications in future health outcomes. However, the Food and Drug Administration (FDA) actions was protecting the rights of the consumer when they blocked 23andMe’s consumer advertising campaign in 2013. Direct-to-consumer genetic testing companies are poorly regulated. There is no current industry standard that consumers can point to when it comes to DTC genetic testing. Therefore, DTC services need more industry standardization and scrutiny on their methods and techniques before the general public can fully support them as valid entities for genetic information. This incident isn’t the first time that the federal government intervened in
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genetic testing, everything has changed. She notes that clinicians now have the ability to diagnose, treat, and monitor a patient’s illnesses or disease progression in an entirely different manner. This is a far cry from the old medical model of responding to a disease (or defect) only after it appears, and then prescribing the recommended medication or intervention. These genetic medical advances sound miraculous and promising, but the ability to test, screen and provide early intervention does not come without many major ethical dilemmas.
There are many questions that would arise, for example, who would have the rights to the genetic information? There are no uniform standards for genetic testing from state to state. Nor are there strict policies protecting the vulnerable. The current standard is GENA, Genetic Information Nondiscrimination Act of 2008, but it is severely lacking. While GENA protects against employers and health insurance companies requesting genetic test results, it does not cover mortgage lending, housing or schools, life or disability insurance. (U.S Department of Human Services). Before considering mandating genetic testing there should be clear and concise policies in place.
There is much controversy around the issue of genetic testing. These controversial issues range from being "unnatural" or against god 's will. There are several different ways to tests genetics but they all have one thing in common: they test for changes or mutations in chromosomes, genes, and proteins. These tests can provide answers for many families who want to know whether their children have become inflicted with a condition due to their family 's genetics, the health of the mother during the gestational period, or by some strange twist of the unknown. Despite all of the controversy, Genetic Testing is acceptable for determining whether an unborn child is at risk of developing a debilitating and/or deadly condition, relieving the worry of parents, and preemptively treating any condition that the child may have.
As technology is improving, there is becoming more of a debate for if parents should get their kids genetically tested. There are three reasons why you shouldn’t, it produces anxiety, finds unknown information, and it can find incurable diseases.
In recent discussions of genetic testing, a controversial issue has been whether genetic testing is effective in helping find cure of some diseases. On the one hand, some argue that genetic testing helps us detect genetically passed diseases from parents to children. . On the other hand, however, others argue that genetic testing costs a lot of money is sometimes is not effective in finding diseases. In sum, then, the issue is whether genetic testing is effective and worth the cost to find a genetically past disease. While some believe that genetic testing costs alot of money and should never be done unless necessary, genetic testing is beneficial in many ways for detecting genetically pasted diseases from parents to children.