ETMA 01
The two resources which I have chosen I feel reflect some of the contrasting models of disability which we have looked at in Units 1-4 of the course materials (E214, The Open University, 2010). The first resource comes from the National Autistic Society’s website and the second comes from the national newspaper The Guardian.
The first resource (Appendix A) is an information page entitled ‘What is Asperger Syndrome’ and particularly focusses on the medical/deficit model of disability, a model which involves identifying symptoms, diagnosing a disease or a deficit and prescribing appropriate treatment (E214, Unit 2, p. 47). This resource is aimed at people who have been diagnosed with Asperger Syndrome, for parents whose
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A label can have an effect on the way we perceive people and how they perceive themselves. Nevertheless, many parents may find that by receiving a label such as Asperger Syndrome it can help to alleviate any guilt they might have had if they think their child’s condition is caused by something they might have done, it can also mean that their child now has access to extra help and support at school. This illustrates how complex the issue of labelling children can be. The second resource (Appendix B) is an interview from 2011 by Ermine Saner on Cerrie Burnell, a presenter on the BBC children’s channel Cbeebies and focuses strongly on the affirmation model of disability, with Cerrie’s positive and self-assured attitude coming across throughout the interview, this stance is in complete contrast to the medical model as seen in Appendix A. It also touches on the social and tragedy models of disability. Cerrie, who was born with her lower right arm missing, explains in the interview how she wants to raise awareness of disability in a positive way (Appendix B). Doctors had told Cerrie’s parents that wearing a prosthetic arm would make things easier for her; however she found it was the prosthetic that was becoming her disability, so
Thesis Statement: Despite the common misconception that Aspergers is a disability, Christopher Boon demonstrates that the syndrome provides him with distinct advantages.
Approximately 947,570 Americans have Asperger’s Syndrome (AS), however, it is not an easy disorder to explain (Bashe 19). With multiple conditions and characteristics in each case, AS is not an easy disorder to diagnose. Asperger’s Syndrome was named after Hans Asperger, an Austrian physician, who first described the disorder in 1944 after studying a group of children with similar, unusual characteristics. However, AS was not made an official disease until 1994. Consequently, Asperger disease is just now becoming published and popular so there is still research and questions being answered. Asperger’s Syndrome, an autism spectrum disorder, is noted by above-average
Parents utilize a lot of time, energy, and finances into pursuing a diagnosis, working with school professionals, and receiving mental health services. Parents and siblings are also affected by the emotional and behavioral needs of the child with AS, such as an AS child needing more attention and support services than their siblings do. “Children with AS lack natural empathy, which interferes with the ability to be sensitive to the needs of others” (Polirstok & Houghteling, 2006, para 5), affecting family relationships. An AS child tends to withdrawal from social situations and from their own family, which tends to result in an Aspie perceiving oneself as a social failure leading to other mental health disorders, such as depression. Some parents feel isolated by their child’s difficulties and a diagnosis provided support systems, such as an Asperger parent support group. One research participant in the Calzada study stated, “Sometimes I mix with mothers of children with the same diagnosis and their children are in special schools but they’ve got the same label. I find that hard to understand. I look at their child and think they’re nothing like my child; I can’t see any similarities but they’ve got the same diagnosis.” (2006, para. 44). A lack of universality for parents seems to be a negative effect of removing the Asperger diagnosis from the DSM-5, resulting in feeling isolated and unsupported as a
1. This book allows one to look into the mind of an eleven year old girl suffering from Asperger’s Syndrome. It gives you examples concerning how she thinks and acts based on her surroundings and emotions.
Autism spectrum disorders are a class of developmental disorders that impair social skills, behavior, and communication (Center for Disease Control). ASDs are considered ‘spectrum’ disorders because each patient has a unique experience in the nature and severity of their symptoms (Center for Disease Control). Under the umbrella of ASDs, there are three types of disorders, including Autistic disorder, Asperger Syndrome, and Pervasive Developmental Disorder Not Otherwise Specified (Center for Disease Control). Autistic disorder is the most severe of the three, and patients exhibit significant problems with language, communication, and behavior (Center for Disease Control). Furthermore, people with Autistic disorder often have some intellectual impairment (Center for Disease Control). Asperger Syndrome is a milder form of autistic disorder where patients have some developmental delays, but their language and intellect are not affected (Center for Disease Control). The mildest of the ASDs is the pervasive developmental disorder. These patients usually don’t meet all of the criteria for autistic disorder, but do show some signs of social and communication problems (Center for Disease Control). The number of children diagnosed with ASD is growing, and currently 1 in 88 children fall somewhere on the spectrum (Mari-Bauset et al., 2013). Boys are four times more likely than girls to have autism, and while the exact cause of these disorders is unknown, both genetic and
Autism is a brain disorder that is characterized by slow and difficult comprehension of spoken and non-verbal communication and repetition of behaviors. Autism is normally noticed in the first two years of a child (Myers & Johnson, 2007). Asperger syndrome is an autistic disorder that has almost the same similarities with autism. People with Asperger syndrome have little comprehension of the world and its surroundings and poor communication with other people. People with Asperger syndrome are hard to recognize, as they do not show on their outward appearances. They are average or above average intellectually and have fewer problems in terms of speech and specific learning disabilities unlike in autism. These difficulties include dyslexia, epilepsy, and attention
It would appear that there are “Starkly contrasting approaches to disability” (Thomas, 2004, p. 569) over the years which have changed dramatically. There are several models of disability which have been well-defined over the last thirty years. The most often mentioned are the ‘social’ and ‘medical’ models of disability. These two models in particular are usually the first starting point of discussion around the topic of disability. In addition to these two models are many others, for instance, the tragedy and/or charity model, the moral model of disability, the empowering model of disability, the spectrum model of disability (Disabled World, 2015).
In contrast to this, I have found while researching these models of disabilities that the social model is very different. It focuses more on the persons rights as a human and emotions than just medicine.
Over the years, more people are becoming aware of Autism Spectrum Disorder, ASD. The growing number of individuals who are affected by ASD have been increasing over the years. This could be do to the new DSM development of what is considered ASD or simply more children are being born with ASD. Either way, ASD is more predominate in our society today. ASD is defined in the DSM 5 as having abnormal social aspects, lack of social skills, non-verbal communications skills, deficits in development, lack of understanding of relationships, and self-stimulation through repetitive behaviors (American Psychiatric Association, 2013). Although these are not all of the symptoms caused by ASD
The dominant model of disability for the majority of the 20th century was the medical model. The medical model’s emphasis is on impairment; this is the cause of the disadvantage disabled individuals face and therefore the site of interventions (Crow, 1996). It is based in the biomedical and clinical. It views disability as a personal tragedy, an idea which is often implicit in work around disability based on the medical model. (Oliver, 1990).
In my personal story, I reviewed my own experience of being a parent to a child with an ASD diagnosis. As it was demonstrated both from the literature review and though my personal story, it is clear that facing an ASD diagnosis is a big crisis. Part of the crisis relates to the stigma of ASD. Parents face judgment and resentments toward their children from the general public as well as judgment on their parenting style. This judgment comes as a result of the typical appearance of most children with
The social model of disability says that disability is caused by the way society acts and is organised, rather than by a person’s impairment or difference. They believe society should change to meet the needs of the child/young person. It looks at ways of removing barriers that restrict life choices for disabled people. When barriers are removed, disabled people can be independent and equal in society, with choice and control over their own lives. An impairment is defined as
In this report, the Medical and Social Models of disability are explained, the relevance of both and their importance in society. My own personal views on both are contained throughout and within the conclusion, based on research, referenced and listed in the bibliography.
This essay will discuss the term - learning disability or (learning difficulties – a term sometimes used interchangeably) and some possible causes. The nature and role of advocacy as a part of the empowerment process will also be considered. All these will be done in relation to Kelly – a person with Down’s syndrome as a case study. It will explain the progress made with Kelly by her support workers and how these can be further developed to ensure a more independent and meaningful life.
Under the Medical Model, disabled people are defined by their illness or medical condition. The Medical Model regards disability as an individual problem. It promotes the view of a disabled person as dependent and needing to be cured or cared for, and justifies the way in which disabled people have been systematically excluded from society. The disabled person is the problem, not society. Control resides firmly with professionals; choices for the individual are limited to the options provided and approved by the 'helping' expert.